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EBE-EuropaBio Joint Rare Diseases /
Orphan Medicinal Products Task Force

To celebrate the 10th anniversary of the adoption of the EU’s Orphan Medicinal Products legislation, the EBE-EuropaBio Joint Rare Diseases / Orphan Medicinal Products Task Force is developing a photographic visual that aims to:
- Picture all 56 treatments for rare, chronically debilitating and life-threatening diseases which have received a positive opinion, plus the 6 treatments for rare diseases that have been nominated “orphans avant la lettre” by the EMEA and the European Commission;
- Showcase the difference the treatments are making for the daily life of European patients and their families; and
- To pass the message that we have done much in 10 years but that more remains to be done

To produce this visual, the EBE and EuropaBio Secretariats, together with a small working group of companies with approved orphans, are contacting all 34 companies with an orphan medicinal product that has received a positive CHMP opinion. Each company will contribute to this initiative by providing us a picture story that best represent your orphan treatment (s) and its / their positive impact on patients’ life.

June 09